Sunday, May 22, 2011

Maggie is 4 months

Our sweet little baby turned 4 months old on May 16th and that meant a lot of things. Mostly, she was soon to have her 4 month NICU follow-up with a Neuro Pediatrician at OHSU/Dornbeckers. So, since I was going to have to take her up to Portland for that appointment, I decided to make 2 other doctor appointments for Maggie the same day. I know, aren't I such the best mom ever? AJ wanted to come as well since the appointment with the Dornbecker doctor was such a big appointment. Big in the sense of finding out how our baby was doing developmentally and big also in the sense of a 3 hour appointment!

So, in the morning Maggie had her 4 month well baby check up with our normal pediatrician. She did great. No big concerns from us and because she is our second, we aren't as surprised when things change and come up, she is a pretty good sleeper and she is a great eater/poop-er/pee-er. What more could you ask for from a 4 month old? So not a lot of questions. Her stats are: weight, 15 pounds and height is 25 inches. To compare, Porter was 15 pounds 12 ounces and 26 1/2 inches in height. She is very normal but man oh man, she is a chunky monkey. And when she got her one shot, the nurse commented that this is when her thunder thighs would come in handy! She still cried a tiny little bit but was her happy smiling self shortly thereafter.

The next appointment was for an ultrasound follow up from her bladder infection. We drove down the rode to St. Vincent Hospital and had a renal ultrasound down. Meaning, they look at your bladder and your kidneys and send pictures and results to our doctor to make sure they are properly functioning. How do you do an ultrasound on a baby? Very carefully. The bladder was pretty easy but the the kidneys they need you lying on your belly, so I tried to hold Maggie chest to chest but she would not have any of it as she is in the stage when she is awake she wants to look out, not at my chest. So, I rocked her a little and she thankfully fell asleep and the rest was a breeze. So glad it worked out that way and we will find out the results early this week. Let's pray all is okay with her kidneys.

AJ, Maggie and I then had a break. We headed downtown for some lunch at Rice Junkies and jumped back in the car to head over to OHSU. And then we headed up to our 3 hour appointment. She met with a clinician who does some evaluations with her (speech, gross and fine motor skills, physical movement, sound awareness and such), then with the Neuro Ped and then with an audiologist. Each person is about a hour session and was super helpful, informative and really nice!

As they tested Maggie for all her motor skills and language, it was said multiple times how much of a talker she was. She was yacking up a storm and was very expressive and funny with the clinician. She did great on all her evaluations except for when you pull her up, she does not help you at all. So she is still slightly low muscle tone. But the doctor explained this is very normal for babies of her NICU situation and she is right on for that and eventually will catch up. No concern really. She reaches for things and swats at things and notices things, all perfect for her age. It is crazy how they can test each of these areas and determine if she is behind in something. I was impressed at all the Maggie put up with!

When they left, we then had about 10 minutes before the Neuro Ped doctor came in and Maggie was out. She feel asleep hard core and slept through the initial question and answer time with us and the doctor and then I had to wake her up for him to do his own observation. She was not super happy about this but eventually started smiling and he was able to do interact with her some. He was happy with her as well. We did talk about concern about hearing loss considering my situation and the history in my family. He also mentioned something else we had never heard before that because of her pulmonary hypertension and the treatment of antibiotics they give for that, Maggie could also be at a little higher risk for hearing loss. He mentioned this and my family history to the audiologist before we met with her.

The audiologist was very informative and nice. We talked about my history and such and discovered that most likely my hearing loss is genetic and related to something I was born with. AJ loved talking to the audiologist about it. I was so happy to know that since Maggie did not have what I had, most likely she won't have severe hearing loss like I do. That is not to say she won't struggle at all, but we will be monitoring her for sure. SO then the audiologist performed a couple of tests on her and her hearing was PERFECT! No issues thus far. Praise the Lord! Again and again Maggie continues to amaze us!

So after 2 hours and 45 minutes we were done. We did another diaper change on Maggie and hit the road back home to Salem. She had done awesome. She slept the whole ride home as she was exhausted and worn out. I don't blame her one bit. It was a lot for us as parents and we didn't have to endure multiple dress and undress, a shot, an ultrasound, two hearing tests, a full motor skills test and 2 check ups by doctors. She was a champ.

Our next follow up with the doctor at Dornbecker is not till she turns one. So no more marathon doctor appointment days like that for a long while.

Miss Maggie, you are a rock-star. Thank you for putting up with everyone so beautifully and still smiling despite all we put you through on Friday. We love you lots, Mommy and Daddy!

P.S. Thank you, Lori, for watching Porter as he would have been bored to tears, literally!

Saturday, May 7, 2011

Maggie's dedication

Mother's Day 2010: I take a pregnancy test on the off chance that my sneaky suspicion is correct. Too my surprise, it was. I was pregnant and my best guess was we will have a baby in January of 2011.

Mother's Day 2011: We take the step as parents that we will raise Magnolia Raine in a home that loves and serves our amazing God. Who knew how much God would teach us in the first week of Maggie's life about total reliance on him, but we are so thankful for our sweet daughter.Now, we have been given the joy of raising her to honor God all the days of her life.








Am I adorable or what?

My good friend, Shannon, gave Maggie this fun pink zebra print hoodie with the mane down the hoodie. Maggie now fits it and just just looking super cute the other day so I took a few pictures of her and her smiles.











Monday, April 25, 2011

Exciting times...

Maggie's life is going to be an exciting one. To what extent, none of us really know but here's the latest.

Maggie recently hit the 3 month mark and has been doing really well. She impresses me each and every day and truly has been a remarkable baby albeit all she had to deal with the first week of her life. She is a happy smiley baby and lights up when we smile at her or her brother talks to her. She is not super fussy nor is she a handful. She is pretty even keeled and goes with the flow.

Well, the last week she got a cold and it was making her congested and a little cranky. The last few days when Lori, her Grammie, was watching her she noticed she would cry when she would lay her down and she didn't want to be anywhere except being held. Unfortunately as a second child, I can't hold her all the time and when Lori has her she is the 3rd child. But there just wasn't something totally OK with how she was acting. I don't want to be a paranoid mother so I just decided when I took her in on Monday for a shot, I would have them look at her to make sure she was all good.

Well, we never made it to Monday. Saturday when Maggie woke up she was a lethargic limp rag doll. No muscle tone, no desire to eat and SUPER congested. She coughed and then threw up mucus and lots of it. Well, this scared me. I got AJ and together we decided we needed to take her in. We ended up at the ER and they checked us in. Because of Maggie's traumatic birth we may always be a bit more cautious with her, but I had no idea what to do if she was struggling breathing.

Long story short, we sat in the ER room from 10:30-3:30 and they watched Maggie's O2 levels, took a chest X-ray, did a flu and RSV swab, ran some blood tests and then did an urine sample. We weren't really sure what they were looking. We then were told she did have RSV which is a respiratory virus and a slight fever. So they gave her some Tylenol for the fever and there wasn't a lot they could do about the virus as, like a cold, it would just need to work through her system. And because her O2 levels did drop some while she was sleeping, they decided to admit her to the hospital for the night for observation.

Off we went to her room which had a bed for me as well, so I could spend the night with her. They checked us in and we spent the night together, nursing, sleeping and the nurses would come in about every hour to monitor her vitals and O2 levels. Maggie did great. She never needed oxygen and never needed any breathing treatments but did have another little fever in the night. So the next morning the doctor came in to let me know how she was doing. And come to find out, she had a bladder infection. The ER doctor saw an abnormality in her blood test and then ordered the urine sample to see if she had an infection and sure enough she did. This would explain all her crankiness and her fever.

Not only was she battling RSV but she also was in pain whenever she peed! Oh man, such a bummer for such a little baby. Well, she is now on an antibiotic to kill the bacteria in her bladder and then we have follow up with her doctor in a week to make sure the infection is gone and get her kidneys checked out. As I know more about all this I will keep you all posted.

But the thing I keep remembering is how all things happen for a purpose. No, I wouldn't wish RSV on anything little child, but because Maggie had it and was not herself on Saturday, we took her in to see the doctor and through the course of events discover the bladder infection that could have gone unnoticed even longer possibly. It would have gotten worse and worse and she could have ended up fighting eating and then affected nursing and my milk supply. But it didn't happen that way. And I am just so thankful that I can see the hand of God in Maggie's life in so many ways. This was another one of them.

We still may have a journey ahead of us with this bladder infection as 3 months old really shouldn't be getting bladder infections, but I am grateful we found it and can now treat it and go forward with figuring out if all her systems are working together or what the next step is, if any.

Thanks again for all your prayers. Maggie is God's child and is so evident in her life. AJ and I are fairly certain with all the excitement she has caused in our lives in 3 months, gray hairs will soon be sprouting. If I am sporting a new hair color, y'all know why now!

Monday, March 28, 2011

Finished the birth story

So back on February 14th, I started the final part of Maggie's birth story. I finished it tonight and it posts it back in February's archives. So, check it out. Here is the link.


By the way, I typed it all with paragraphs and when I published the post, no paragraphs. Annoying. I am going to try and fix it. Just so you know, it was not meant to be the way it is.


Enjoy.


MA:)

2 months

Maggie had her two month check up last Thursday. Here are her stats.


12 pounds 1 ounce

23 1/2 inches long


Here is what Porter was at 2 months.


14 pounds 2 1/2 ounces

24 1/2 inches long


Maggie is a chub but is petite in comparison to Porter!


We love her and love watching her smile!



Porter loves his sister!



"Why are you taking my picture?"


Aren't her babylegs just the cutest? Thank you, Aunt Christy!!




Thursday, March 3, 2011

How is Maggie doing?

Well, for all you wonderful people who still read Miss Maggie's blog, I would love to update y'all.

Maggie is now 6 almost 7 weeks old and she is doing wonderfully. When we left the NICU we were told to treat her like a normal baby and that is what we have been doing as best we know how. Each day it got easier as we got further away from the scariness. I still check on her constantly when she is sleeping to make sure she is still breathing. I may be a bit more obsessive with her than I was with Porter but with due reasons.

When we left the NICU the doctors there were referring us to a Neuro Pediatrician for follow-up and also to an Early Intervention program. We were also to follow-up as normal with our own pediatrician. So Maggie has seen our ped doctor twice and all is well with them. She has gained weight, poops and pees just like a normal baby. She nurses and eats and burps, all things we are happy she has taken to very easily. I was a little worried since she was not instantly given the boob after her birth or for the first four days of her life, but she took to it very naturally and has not had any issues since. I did pump for the first 4 days and have continued to pump one time a day and my milk supply has not been an issue at all. If anything, I may have oversupply but I am fine with that as I go back to work in a week.

About a week after we were home from the NICU, the Neuro Peds doctor called to set up an appointment. Apparently, it is a 3 hour appointment and they only have office hours on Friday and they wanted to do it when she was 4 months old. So we will see them in May and see the doctor and two other teams for testing and evaluation, one of them being hearing. She passed her hospital test just fine so they are not worried about it. My opinion being is she is a baby, they can't test her speech or play yet so a developmental thing is her hearing so they want to double check it. I am all for that since we have hearing issues on my side of the family. Test away. AJ and I will take the afternoon off to head up to Dornbecker's for this appointment and I will post more after we go in May I am sure.

And then I also got a call shortly after arriving home from Marion County Health Services from a nurse with the Cocoon program which is like Early Intervention. They come to your home every couple of months to monitor you baby and report back to the pediatrician if needed. They also are the ones that evaluate her milestones and if she needed therapy of some sort, could get us set up with what she needs. They generally take you through 15-18 months old and if she continues to need further assistance, they could also set us up with the Early Intervention then with the school district. So she is in the "system" and is being watched as we honestly have no idea how this all may have affected her.

Maggie is showing no signs of lag at this point. She is growing, gaining weight and doing the reflexes and milestones a baby of her age would be doing. When the nurse for Cocoon came, she weighed 9 pounds 12 ounces at 5 weeks and was born at 7 pounds 4 ounces. She was 75% percentile in weight and height and 50% for her head. So very normal and healthy. The nurse did a variety of reflex tests and she responded to all of them very well. At this point the nurse was happy with her and will be back some time in May to visit us again. One thing she did mention, I did not know this but others around me did, was that one of the things Maggie was diagnosed with was called HIE. I can't remember what it stands for and it is impossible to say, thus the acronym. Basically, what it means is that she had an insult or injury to her brain. The range of what the outcome would be from that injury is so vast and thus why no one can really tell us what life will be like because no one really knows.

Maggie's brain was without oxygen which in turn causes swelling and is an injury to her brain. She has had no seizures since we have gotten home and has been progressing as a normal baby. The amazing things that I know and cling to are:

1. Babies are super resilient. If brain injury is going to occur in one's life, it is best at the baby stage as they are still developing and have the ability to rewire things to make it work and function. As adults we are developed and more so have to relearn things to adapt to an injury. So very cool and remind myself of this often.

2. We serve and love an amazing God. He allows everything in our lives to happen for a reason and knows EVERYTHING. He knew this was going to happen and could have protected Maggie's brain the entire time and she will never have anything go wrong. Or something could pop up for her and us and we will take that as what he has given us and Maggie to embrace. Either way, no reason to worry myself over this. I just have to relinquish my fears and my need to control and let her grow and be a normal baby.

So yes, how is Maggie doing? She is amazing. She sleeps, smiles, snuggles and is just starting to find her voice and babble. So much fun. Porter loves his sister and is always wanting to hold her and share his toys with her. She is a second child and I am learning to accept that and be the best mom I can be to her and to Porter at the same time. Being a family of four has been an adventure for all of us and soon when my maternity leave ends, we will be on a new adventure. Grammie will be watching 3 kids 2 and under and I will be a part time working mom of 2. Somehow I can't fathom getting ready 3 days a week in the morning with both of them, but I know I can as I have done it a few times. :)

It just all goes so fast and I am trying to enjoy each moment as much as possible and love my kids and my husband in whatever stage we may be in.